What are NETs? 

Neuroendocrine tumours (NETs) is the umbrella term for a group of unusual, often slow-growing cancers. The term neuroendocrine implies that these cells have received some nervous connections, (neuro- ) and the cells have the ability to secrete hormones (endocrine). 

Neuro-endocrine = messenger cells of the body

Where do NETs occur?

Neuroendocrine tumours (NETs) is can start almost anywhere in the body, but most commonly found in the digestive system, lungs, pancreas and reproductive organs. These tumours develop from secretory cells found throughout the body and which are particularly concentrated in the gastrointestinal system.

Common symptoms of NETs:

Because they have the ability to secrete hormones and depending on where in the body they are, they can cause different symptoms and issues. Not all patients will have the same symptoms and this can make it hard to diagnose and treat.


Below are some symptoms experienced, (but not limited to):

  • Abdominal Pain

  • Diarrhoea

  • Flushing / menopause like symptoms

  • Bloating

  • Wheezing / chronic cough

  • Heart Burn

  • Weight changes

NET's can be disguised as or mimic symptoms associated with IBS (Irritable Bowel Syndrome) or other chronic digestive problems. If in doubt, seek further advice from a experienced medical professional.

Every NET patient is different and it is important to be cared for by an experienced physician and ideally by multiple specialists for optimal care.

New Zealand NET Patient Guide

Newly diagnosed, or doing your research, our comprehensive guide has loads of information, click the book below to view our e-book or contact us and we can send you hard copies

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