On this page you'll find a collection of resources that aim to inform and educate.
New Zealand NET Patient Guide
This booklet has been developed to provide information about neuroendocrine tumours (NETs) for patients and their families. Click on the image to view the PDF version.
If there is any information in the guide that you do not understand please discuss it with a member of your medical team. Further or more detailed information about your type of neuroendocrine cancer may also be available so please do not hesitate to ask for this as well.
We hope this guide will be a helpful and informative resource throughout the coming weeks, months and years.
If you would like to receive a hard copy to your home or work address by post, please send us an email with your NZ mailing address; email@example.com
PRRT in New Zealand: a guide for patients
In September 2020 PRRT launched in New Zealand for the first time, thanks to years of Unicorn Foundation NZ advocacy.
To help patients understand what this treatment involves, Unicorn Foundation NZ has worked with Auckland District Health Board to produce a patient guide.
Need help with PRRT transport?
Unicorn Foundation NZ can help take the worry out of your treatment journey.
As the national charity helping neuroendocrine cancer patients up and down the country, we understand the uniqueness of these cancers.
With our dedicated Unicorn Foundation NZ car, we’d like to make your PRRT journey easier. We can come and pick you up at the airport and transfer you and your support person safely to your accommodation or appointment. We can also help if you are driving from out of Auckland and feel uncertain on the motorway, or just need a bit of help navigating central Auckland in peak traffic. And of course if you live in Auckland but for any reason need help to get to the hospital in Grafton for your appointments, we’re here for you too.
This service is completely free. Click on the image for more information.
Somatostatin Patient Advocacy Brochure
In May 2020, we surveyed our NZ NET community to find out about their experiences with NET treatments and the impact that patients face to receive somatostatin treatments.
This report documents the findings and supports Unicorn Foundation NZ's request to have both octreotide and lanreotide fully funded by Pharmac.
Click the image to be directed to the full report.
Neuroendocrine Cancer Nutrition Toolkit
This nutrition toolkit was developed to assist patients with NETs to self manage symptoms, and urinary tests at home. This guide is intended to provide patients with general nutrition tips. For more personalised nutrition advice please contact a dietitian.
Click on the tip sheets below for nutrition tips on:
Special thanks to Kelsey Paterson, Olivia Cochrane and the University of Otago for their research and this resulting toolkit.
Watch: NET Education Day Presentations
Although we have been fortunate enough to deliver valuable Education Days for our NET community, we understand that not everyone can access these annual events.
Some of the NET specialist talks from previous years NET Cancer Education Days can be viewed by following the You Tube Channel links here below.
Thank you again to our NET specialist speakers who all voluntarily gave their time to present at these Education Day events.