NET Resources

On this page you'll find a collection of resources that aim to inform and educate.

Help us tell PHARMAC what's important for you

PHARMAC has released their draft 2020/21 Invitation to Tender, and they are welcoming patient feedback. We've drafted our Unicorn Foundation NZ response for you to read through - do let us know if you have any comments or suggestions. Our goal is to see both Octreotide and Lanreotide fully funded to provide more options for patients.

 

Please support our campaign by writing a brief submission of your own. We have drafted a template, or you can craft your own. The deadline for submissions is 4pm, Monday 31 August by email.

PHARMAC SF, MS, ES, DSM.JPG

Somatostatin Patient Advocacy Brochure

In May 2020, we surveyed our NZ NET community to find out about their experiences with NET treatments and the impact that patients face to receive somatostatin treatments. 

This report documents the findings and supports Unicorn Foundation NZ's request to have both octreotide and lanreotide fully funded by Pharmac.

Click the image to be directed to the full report.

Somatostatin Patient Advocacy Brochure -

Neuroendocrine Cancer Nutrition Toolkit 

This nutrition toolkit was developed to assist patients with NETs to self manage symptoms, and urinary tests at home. This guide is intended to provide patients with general nutrition tips. For more personalised nutrition advice please contact a dietitian.

Our thanks to Kelsey Paterson, Olivia Cochrane and the University of Otago for  their research and this resulting toolkit.

Click on the tip sheets below for nutrition tips on:

Bowl of fresh fruit
Watch: NET Education Day Presentations

Although we have been fortunate enough to deliver valuable Education Days for our NET community, we understand that not everyone can access these annual events.

 

Some of the NET specialist talks from previous years NET Cancer Education Days can be viewed by following the You Tube Channel links here below. 

Thank you again to our NET specialist speakers who all voluntarily gave their time to present at these Education Day. 

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