NET Resources

On this page you'll find a collection of resources that aim to inform and educate.

PRRT in New Zealand: a guide for patients

In September 2020 PRRT launched in New Zealand for the first time, thanks to years of Unicorn Foundation NZ advocacy. 

To help patients understand what this treatment involves, Unicorn Foundation NZ has worked with Auckland District Health Board to produce a patient guide.

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Need help with PRRT transport?

 

Unicorn Foundation NZ can help take the worry out of your treatment journey.

As the national charity helping neuroendocrine cancer patients up and down the country, we understand the uniqueness of these cancers.

With our dedicated Unicorn Foundation NZ car, we’d like to make your PRRT journey easier. We can come and pick you up at the airport and transfer you and your support person safely to your accommodation or appointment. We can also help if you are driving from out of Auckland and feel uncertain on the motorway, or just need a bit of help navigating central Auckland in peak traffic. And of course if you live in Auckland but for any reason need help to get to the hospital in Grafton for your appointments, we’re here for you too.

 

This service is completely free. Click on the image for more information.

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Somatostatin Patient Advocacy Brochure

In May 2020, we surveyed our NZ NET community to find out about their experiences with NET treatments and the impact that patients face to receive somatostatin treatments. 

This report documents the findings and supports Unicorn Foundation NZ's request to have both octreotide and lanreotide fully funded by Pharmac.

Click the image to be directed to the full report.

Somatostatin Patient Advocacy Brochure -

Neuroendocrine Cancer Nutrition Toolkit 

This nutrition toolkit was developed to assist patients with NETs to self manage symptoms, and urinary tests at home. This guide is intended to provide patients with general nutrition tips. For more personalised nutrition advice please contact a dietitian.

Our thanks to Kelsey Paterson, Olivia Cochrane and the University of Otago for  their research and this resulting toolkit.

Click on the tip sheets below for nutrition tips on:

Bowl of fresh fruit
Watch: NET Education Day Presentations

Although we have been fortunate enough to deliver valuable Education Days for our NET community, we understand that not everyone can access these annual events.

 

Some of the NET specialist talks from previous years NET Cancer Education Days can be viewed by following the You Tube Channel links here below. 

Thank you again to our NET specialist speakers who all voluntarily gave their time to present at these Education Day events. 

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