Unicorn Foundation NZ offers patients, families and healthcare professionals around the country a number of support systems, ways to connect and keep informed.
Below is a list of ways you can receive support from Unicorn Foundation NZ. Check back regularly as we update our support services.
NET Nurse Specialists
We have two experienced NET specialist nurses who are available to answer questions and provide information.
Avril Hull, North Island NET Information and Support Manager
Avril became our Information and Support Manager in 2015 and confesses that one of the ways she has learnt so much about NETs was through listening to people – patients, their relatives and friends. “I always feel humbled when people share so openly their NET journey and I feel privileged to be in a position to meet people from around the country in this role.”
Avril also works part time as a Nurse Specialist in Neuroendocrine Tumours at Auckland Hospital and part time as a Research Nurse with the NETwork! Project Team who are doing genomic research on NETs at the University of Auckland. “I love my work because it is challenging and I am always learning
something new.” She is married with 2 children who keep her busy in her spare time.
Lesley Harrison, South Island NET Information and Support Manager
Lesley joined the Unicorn Foundation in late 2018 as the South Island support and information manager.
She is excited to have the opportunity to enhance the support available for South Islanders, their whanau/family and friends, who are living with this quirky cancer and values the opportunity to meet so many of you through this work.
Lesley developed an interest in NET’s when a close family member was diagnosed in 2013. She also works part-time at a private surgical hospital in Christchurch and through this work has noticed an increase in the number of people undergoing surgery for NET’s.
Lesley is married with 3 adult children, 3 gorgeous grandchildren and 2 dogs.
There are two ways you can connect on Facebook; Follow Unicorn Foundation NZ's public Facebook page for general news and updates.
Our closed Unicorn Foundation Patient Support Group offers patients from around the country a chance to connect online; you can talk and connect with other patients no matter where you live.
This group is specifically for New Zealanders who have been affected by NETs as a patient, family member or close supporter of a patient. It's a platform to share information and open lines of communication with others who may be experiencing the same issues as you. Please use this group to share knowledge and support each other.
To maintain privacy, this is a 'closed' group, which means that your posts are only shared with those within the group.
Patient Cuppa Catch-Ups
We believe that sometimes the best support can often be found by meeting others who are going through a similar journey. With this in mind, we try to facilitate and offer opportunities for patients and families to meet in a relaxed manner. We host patients meetings around the country, we purposely host in local cafes so you can easily attend and meet others without feeling any pressure to stay or contribute in a group environment, come and go as you please.
Click the button below for upcoming Cuppa Catch-Ups, or email us if you would like a meeting in your area: email@example.com
'Zoom-In' Monthly Video Calls
Another way we can support our NET Cancer community is by organising monthly video calls for you to join. These sessions aim to connect and educate. Often we have guest speakers who talk about a particular NET or wellbeing topic, or just offer an opportunity to connect with other NET patients, support people or HCPs around the country.
Our private FB group and web page is regularly updated with upcoming Zoom session times, topics and links to join.
New Zealand NET Patient Guide
This booklet has been developed to provide information about neuroendocrine tumours (NETs) for patients and their families. Click on the image to view the PDF version.
If there is any information in the guide that you do not understand please discuss it with a member of your medical team.
Further or more detailed information about your type of neuroendocrine cancer may also be available so please do not hesitate to ask for this as well.
We hope this guide will be a helpful and informative resource throughout the coming weeks, months and years.
If you would like to receive a hard copy to your home or work address by post, please send us an email with your NZ mailing address; firstname.lastname@example.org